APRIL NEWS and EVENTS April 30, 10:00pm - Okay, well, we just got home from the hospital where we had an MRI. Bobbi admitted she was having more and more headaches, though they were more like flashes. Anyway, the MRI technician said it was going to be a few days before anyone would "read" it and tell us what it said... but we got a copy of the CD! It's probably a bad idea for a layperson to try to interpret an MRI image without years of train. For example I think one view looks like a kitty cat. In the large view the top left one looks like The Cowardly Lion with his eyes closed to me. Bobbi says her headaches are all just behind her right temple area, but on both bottom views we both think we see a mass on the left side. Maybe it's something the cat left. The good news is afterwards we actually went out to eat and she actually ate a lot of he meal- fried catfish! She ate all her brocolli and a whole filet. April 28, 6:00am - Three months. I guess it's going to rain all day. I'm glad I got all the raised beds inside "the cage" built and planted. Yesterday we had a deluge, a real frog strangler. There were a few minor "blow outs" in the raised beds, but very few. In between squalls we went and covered the two most vulnerable beds (lettuce and carrots) with landscape cloth, so we're in good shape. Today is a consultation with the "radiation oncologist" Dr. Thomas for an after-radiation follow-up consultation. Bobbi's mom will take her to that meeting. Tonight we'll got over to her house for supper with Alayne. April 27, 9:00am - Wow- April is almost over and May is upon us. This should be a good week- no chemo and very low doses of steroids (assuming she remembers to take them). If "the wig lady" is at work this week Bobbi Sue might get some new hair! That would cheer her up (unless she hates the wig!). I think the hair loss bothers her more than the nausea if that's possible. It's why she has banned any photos of her (by herself anyway). I hope the wig comes. Stand by for news! It's a bit of a rough morning olfactory wise, but that's a good thing. Bobbi decided she would actually cook breakfast this morning. She decided to make quiche, but everything smells bad to her. Feeling nauseated makes it hard to cook Still, after an hour I hear her breaking eggs, so we have progress! She's one tough cookie, eh? Our 80% chance of rain is down to 70%, but it's not raining yet. I might sneak in the last raised bed inside the garden (but not the last raised bed) before it does rain. I still have several beds to make outside the fence- squash and gourds mostly.... maybe some pumpkins... and there's still more Beefsteak tomatoes I started with no home yet. April 26, 12:00pm - Okay, news update. I just got a call from Bobbi. She feels okay but is having some allergic reaction (probably pollen) that is making her eyes water like crazy. She sounds pretty tired to me but denies this. She's excited though, because our friend and brother Scouter Jake Shuler actually made our cub pack a cubmobile imagine a simple soapbox derby car)!Way to go Jake (he said he just got carried away). Meanwhile I have finished most of the garden and have made the cucumber bed (outside of the fenced area). In the process I unloaded the 3,000 pounds (according to the weigh station) of fine compost. Is it break time yet? Dang- it's noon and Uncle Roy isn't here. Who am I gonna talk to? April 26, 9:00am - BEWARE!!! There is a mad woman on the road! Let me explain... She's been feeling pretty good the last few days AND getting lots of rest. I also suspect she is not taking the Decadron like she is supposed to. Never mind what the site says about most people not feeling any of the listed side effects- she feels them all. Anyway, she's been feeling guilty about letting the cub scouts down and it has weighed heavily on her mind. Last night I made a nice supper, roast chicken, spaghetti squash and scallops scampi (all cooked out on the grill so she wouldn't barf). We then went to bed early. April 25, 11:00pm - Not much to report. She says she feels great, but you know what a liar she is ;-) April 24, 8:00pm - Don't worry- Tiger Woods doesn't have to worry about playing against me.... unless he needs a good laugh. LOL- well, Bobbi's team The KnockaWhackas played in the Rotary Golf Tournament. We had a blast, and in spite of myself (I think of golf as a good walk spoiled) I had a great time. We "parred", but that meant we had the worst score. How did that happen? Anyway, it was still a lot of fun and it was for a good cause too!. Now, here's some words from the "guest contributor" - April 23, 12:00pm- Okay, the meeting with Dr. Rhoton's staff went well. Bobbi will continue to have numbness on her "brain scar" for at least a year. We have to wait a while after radiation before we can chance an MRI to look for more tumors. Time will tell. For myself, I'm hoping I can hang another kitchen cabinet before it get's too dark. I gotta go out in the yard and learn how to hit gold balls! Thanks to the IWANNA, I even got myself a set of golf clubs, and Lloyd gave me some drivers to complete the set. Ain't we got fun? I know- suck it up, Lambert, it's for a good cause! LOL. April 21, 9:00am- I'm sorry about the email thing. I just don't seem to be able to concentrate on much these days. I'm very lucky I have my job, because the work comes easily to me and is, well, not exactly a distraction but a welcome focus of attention. I've spent a long time trying to charm the snakes in my head. Right now I guess I'm not much use to many people, but I need to concentrate on Bobbi right now. I know you all understand, but I had to say it anyway. Thank you. April 20, 6:00am- Today is a big day! We'll see how it goes. We're supposed to go the Greenville to visit my brother Steve, then he's taking us to see The Moody Blues in concert! Will Bobbi be strong enough to make it through the whole day? I don't know... she gets tired pretty fast. We'll see..... April 19, 11:00pm- Hello! Sorry for thr late posting. We had a full day! Since it was raining we
just stayed in bed till 10am, when Uncle Roy came over. We had a great visit- we fixed all the problems of thee world
except for our whacky family and the Sunni/Shiite thing. Kim and Ethan also came over, and when it stopped raining after
3pm he helped me in the garden. April 18, 7:00am- Yesterday was a good day! Bobbi's mom came over and the girls (Kim too, before she went to work) worked in the yard a bit. Then at 5pm we went to our Scout meeting and finished spreading mulch on the walking trails by "the village". Bobbi even managed to eat two slices of pizza (extra cheese) and drink a PEPSI. This morning she told me her lymph nore tumors feel even smaller. I hope they are. The 10% reduction is size after a week of chemo was really good news. We'll take it day by day. This morning we had a big breakfast- a bowl of hot KASHI and some toast. Then we heard the weather report- Rain! Dang-it, rain tomorrow. so much for the garden.... it would be one thing if we could just lie in bed and drink coffee, but I imagin she'll have an "indoor chore" list for me! LOL... and I'll do them, too! April 17, 6:00am- Well, yesterday was chemo day, and we had a pretty full day. I made breakfast- scrambled eggs
(which she ate 2 of) and bagels which she half of). We had a long consultation with Dr. Pekal, the medical
oncologist (always a delight), then Bobbi went for her chemo. While she was at chemo I got to go over to my Aunt Lib's and visit with her and cousin Steve. After chemo, we took a load of donations to the Habitat For Humanity store, and
finally went for a late (after 3pm) lunch at the best greasy spoon in WNC- the Coffee Shop in Sylva. Bobbi actually ate half of her Rubin.
Then it was off to Kim's house were "we" finished "roughing in" the electrical work in their new upstairs master bedroom. Finally, we were home by
7pm where we unloaded another 1,000 pounds of topsoil and I cut boards for one more raised bed in the garden. That left just enough time to
mow the lawn. Whew- full day, eh? I grilled some chicken breaths (outside!) for supper and we had a nice salad. Bobbi actually did not eat most of her's. Dang.
Dr. Pekal suggested lemon candy to stimulate her taste buds.Now for the news- April 15, 8:00am- Sorry about no post yesterday. We had a full day and today is fuller (I know- hold the grammatical corrections please).
Yesterday was my dad's and Donna birthdays (and today is my sister Susan's and our grandmother Rosa Smith Lambert's).
It's also tax day, and I think I'm gonna be late. We had a nice party at David's, then went home
and spent the evening in my music room where I finally figured out how to play "The Boy Inside The Man"
by Tom Cochrane- I dreamed that I saw her standing there.. and all at once I knew she'd understand
the boy inside the man. She knew I was singing it for her and her little ole face just lit up. We had a nice time. April 13, 11:45pm- Sorry it's a late post. It was a busy weekend. Saturday morning Uncle Roy came for a visit,
and we discussed everything from going to Mexico to how far apart to space the strawberries in my garden. He even posed for a photo!
Then Bob took off. Dave lent me his push mower and I mowed the lawn, then started getting the garden planted. Later
David and Donna brought us supper- yummy chicken. April 12, 11:00am- It's a quiet morning here in Cherokee. It was supposed to rain all day...it did rain a lot early this morning, but the suns been out for an hour now, so I'll work quietly in the yard. Bobbi is sleeping in. We had supper at David's house and our old friend Bobbi came over while on his way to Santa Fe. Bobbi went to bed around 10pm and has slept pretty steadily. She is very much whiped out still... maybe more today than on Wednesday. She did eat better last night- spaghetti and salad, and I made her a poached egg this morning. She is so sweet, but she apologizes for feeling bad! How can I make her understand she's not a bad person because she's tired???? Maybe I need to put it in writing (Hey- I just did!!!). I guess for now I'm going to ask for most everyone to not call before noon. If she can sleep and recover I think that's best for her (for a few days). I hope that this weekend she'll start recovering. The complication is she may also have a cold (or an ear infection), so she needs a lot of rest. I'll keep you posted! April 11, 1:00pm- It's Friday! Go home and do chores! Actually, when they are fun they're almost like a hobby- right?
Yesterday Bobbi went with me to Scouts! We, the cub scouts,the boy scouts and the parents met at the Oconaluftee
Indian Village and spread mulch over about 1/4 mile of walking trail. We'll go back next week and finish. The good news is Bobbi worked
the whole time (mostly raking). The bad news is it really wiped her out. She went home and went to sleep
and pretty much slept till noon. I went home for lunch to check on her. Anyway, she is supposed to exercise to
keep her strength up, but probably not two hours of hard labor. Still- she stuck with it and worked as hard as
everyone else.
April 10, 7:00am- Well, yesterday wasn't too bad. Bobbi didn't feel good, but she still felt better than she had after radiation treatments. Of course, this was just the first chemo, and as the treatments continue the effects may accumulate. We'll see. She did feel good enough to go outside and help me with the garden. I made a third "raised bed" and filled the second one I made with soil mix. I mixed topsoil, organic compost and our clay fill together and filled our 4x12 bed. I can taste the "maters" already! Bobbi was pretty pleased with our progress. April 9, 3:45pm- Okay- chemo update. Well, Dr. Pekal was concerned because Bobbi has a lot of burns still on her head and
face radiation (imagine a week at Cancun go horribly wrong). The radiation oncologist's office said it was fine, so we started chemo.
Bobbi's blood work shows her sugar is elevated again, so we're going to start checking glucose and giving insulin again. They gave her
a dose of anti-nausea medication and she feels not too bad right now. The dose is supposed to last about three days. (Bobbi's reading
over my shoulder making sure I'm behaving). Pretty much she's relieved to have a week between treatments. She hopes to be feeling more
normal than ill for the majority of the time. FYI- "we" are taking Carboplatin
and Abraxane. We were going to start Avastin,
but because we're not so sure about her "sunburn" and because it can have nasty side effects, we're going to wait until the effects
of the radiation diminish some more. Avastin is a drug that inhibits the growth of blood vessels in cancer cells. Dr. Pekal does think her
lymph nodes have decreased in size- that's probably from the Xeloda which she only took a few days. The bad news is the final "core
biopsy did confirm Bobbi is "triple negative."
So- that's the chemo news. Now we're home and she's resting. I'm going to work in the garden and see if I can get the tiller running. April 8, 11:45am- Hey, just a note to say I hope you like the pink bracelet slide show! More pictures are coming, so keep
watching. You might see yourself! April 7, 1pm- Here's a little note from a "guest contributor". April 7, 7am- What's this??? She's hungry AND she's cooking eggs. The fan is blowing full blast to blow the smell out,
but she's actually cooking eggs! It's like a miracle. Bobbi has had nausea so bad she's hardly left the bed for four days. I was afraid
to go to work today, but I guess it's alright now. Bobbi's mom and sister are coming, so she'll be in good hands. She ate one egg, a
slice of tomato, a piece of toast and a few chucks of avocado. That's more than in the last three days. April 6, 8am- Good morning! Well, yesterday was a pretty rough day, at least as far as Bobbi's health is concerned.
Maybe that's too harsh a judgment... anyway, I guess she spent maybe 5 minutes out of bed all day. She was just so tired. This morning
Bart and Courtney are going back to Florida, so we'll have a big breakfast! Hey, Bart is the latest volunteer- he's a Knocka-Walka!
Later on, around noon, Bobbi's mom and sister Sarah and brood came by to show us who has pride! April 5, 11pm- Bart and Courtney helped me all day with the kitchen.We did some of the nagging jobs- redid a broken
drawer, put up trim, etc. We even had a nice long visit with Uncle Roy! Since I was slack getting web page updates out he decided to
come check in himself. Then, since Bobbi wasn't able to, Bart and Courtney went with my to take Ethan (the E-man) to the circus! We
had a pretty good time, but it was "Boo's" first time around large animals... he had a hard time with the smell. "It
stinks here, I wanna go home!" However, once he saw them inflate the giant slide he forgot the smell. He stuck it out and really
enjoyed the show- one of the last 7 circuses still performing under a tent. After that we took the boy home and had a good visit with
his mom and dad. April 4, 10 am- New news! We just learned that Bobbi's chemotherapy sessions will not be 5 a week for three weeks
and one week off- they'll be one day a week two hours at a time. We don't know if it will be three weeks on, one week off. We're glad
the radiation is over. It's been rough, but not always in ways you'd expect. For example, not only can she not stand the taste of
coffee or bacon (her two favorite things)- she can't stand to smell them being cooked or made. She can't stand the smell of any
food being cooked ...except tea. Tea smells okay. When I cooked bacon two days ago she went outside and sat in the rain. Dang.
Yogurt anybody? April 3- Sorry, I was bad and didn't get an update up. We had a full day and had a meeting with Dr. Thomas, the radiation oncologist. I got some answers to my questions..... Anyway, tomorrow is the last radiation treatment. April 2, 12:00pm- Well, we're getting used to our new hair (our lack there of). I don't know what's worse-
having hardly any hair left or what's left being mostly gray! Anyway, our angel isn't quite up to posting a picture of her
with her new look, so you'll have to wait a day or two longer. I think she looks wonderful, but I admit to being impartial.
Once again we're incredibly grateful to our loved ones who put on the hot dog benefit for us. We wish we could show you how
honored and grateful we are. Yesterday we had to say "see ya" to our sister Jill who went back to NH to take care
of the rest of her family. Sister Sarah is going to tag in this weekend, and my oldest friend Bart and mt brother Sam from
Knoxville are incoming too! Holy Moly- I'll be up to my <insert any colorful body part here> in chores!!! LOL- at least
I'll have some help, and I get to cook for my family. Bobbi wants to have a luau too pretty soon, so I gotta get a pig!
Hmmm...okay, the kitchen's not done, but I did prune the apple trees and hang light fixtures.... I gotta make a list. April 1, 7:30am- No, no April Fools jokes here. We spent yesterday morning anguishing over what treatments to stop and what to start and decided to just stick with the plan.Bobbi's hair is gone, and she has three more radiation treatments on her brain to go. Then, next week, we start chemo with a vengence- a triple chemo cocktail. We're still "jazzed" by the hot dog benefit our loved oned held for us last week! What a blessing. We can't than you enough, but we're going to try! Page updated April 21, 2008. For more information or to send us photos
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