MAY NEWS and EVENTS May 30, 7:00pm - Well, Bobbi's white blood cell count was high enough for chemo...barely. They've rearranged her schedule now. From now on she'll get shots to build her blood up twice a week then have chemo Friday mornings. That's okay, I suppose`. She feels good- just tired. Tonight we're in Greenville, SC visiting brother Steve and his family. May 29, 7:00am - June is almost here- that will be our sixth month fighting Bobbi's cancer. There's not much new to report. Her tumors seem to continue to respond to chemo, but of course the chemo is leaving her very weak. Feeling guilty about resting, she will work on projects with a burst of energy that soon leaves her pretty drained. Still, we're better off than many people and grateful for every new day. For me, one of the odd things is everyone around me being concerned about how stressed I am. Almost everyone mentions it. I thought I was dealing with it pretty well, but I guess I'm so stressed I can't tell how stressed I am ;-) OMG- I've got stealth stress! Now I'm really stressed! LOL. May 27, 7:00am - Wow- we got a lot done this weekend! We had a nice cookout Sunday and got the stove in too! Then yesterday we got the custom cabinet for over the reinvigorate done AND worked in the garden. Dave, Donna and Jordan even came over for hamburgers on the grill (and Dave cooked them!). The cabinet was a tough one. We'd been "discussing" it for months. It seems LOWES will not let you order custom sized cabinets and they didn't make any that would go over the fridge.... so I bought a base cabinet and robbed the doors off of it, rotated them 90degrees and build the cabinet for them. Not bad. The main thing is Bobbi was pretty frantic that I'd never get around it (wasting all my time in the garden you see), so now that it is done there's a big burden lifted. She is very pleased (and that's good for me!). She even worked in the garden to celebrate! May 26, 7:00am - Happy Memorial Day. Well, let's continue working on the kitchen today. Last night David and Steve (and Donna and Susan) came over for a cook out. They helped me install the new stove in the new kitchen. Bobbi just fretted I was going to waste all my time in the garden, so I had to do something. The stove is very nice and will be easy to keep clean (a plus when your hubby is a slob). I have to finish building the cabinet to go over the fridge and then at least the $!#@!@ cabinets will be done. I think we'll also experiment with some supplements to help build up Bobbi's blood. Because of her chemo there are some things she absolutely can not have (like folic acid and some B vitamins) so she's refused to take any supplements..... The good news is the nodes under her arm continue to shrink (it seems to us) and the inflammation of her breast has lessened some more. She's still taking her ear drops and her hearing is improving! May 25, 5:00pm - Oh my gosh- no update for four days! What's wrong with me.... sorry folks.
We had a full couple of days. Bobbi could not go anywhere because of her low white blood cell situation, so I went to Boy Scouts Thursday night, then went to the high school Friday night to watch some of my scouts graduate! On Saturday Cousin Barry and his sweet wife Janie came for a visit and a little chicken. Barry just heard about Bobbi, but wanted to make sure he showed Pink Pride! There's a picture of them all together. Y'all call Bobbi and tell her how good she looks because I about had to beat her to get her to let me take her picture. May 21, 11:00pm - Now this is a late post. Okay- complications. Bobbi could not have chemo today because her white blood cell count was too low. Dangit. Anyway, the next penning they had was Friday next, May 30th. So much for going away next weekend. The real bad thing is her white blood cell count is low, so she's very susceptible to any infection. I'm afraid we have to ask anyone who's sick, been sick or been around someone who is sick to not visit for a while. I guess that means we're staying home this weekend too, and we won't be able to go to the high school graduation Friday night. Dangit! Other news- my sore heel seems to be a bone spur. Sarah's gonna kick my butt at the walk-a-thon. May 20, 10:00pm - Now it's 10pm and the power company is shutting the power off any minute, so I'll be brief. Today was a good day. Yesterday was a little rough, but today is good. Tonight we went to the Cherokee Cancer Support Group's monthly dinner. It was very nice. Then we went and visited Uncle Roy. He's recovering from surgery to remove a gall bladder stint that got infected and nearly killed him. He's better, but recovering slower than we'd like. Tomorrow is chemo day- the last session of the second of three rounds of chemo. The stuff seems to be working, so cross your fingers (and toes). No chemo next week-I think we'll go away for a while.... but it better be a nearby away place at $4 a gallon! Maybe we'll go to Dollywood! LOL. Pity the prez wasn't in health care instead of the oil business. Halliburton would have cured cancer by now. May 19, 12:00pm Well, we had a heck of a few days, but in a good way, so I was not able to update until now. You see, we've been camping. Our Boy Scout troop hosted a huge pack of cub scouts from the Charlotte area and we were rather busy. We were prepping for the last two months as best as we could. There was to be 150 boys and 100 adults, but gas prices kept the numbers down. Still, we had 75 Cub Scouts on our hands. Bobbi taught all the cubs how to make some traditional items like bone pendants, drums, rattles and such and I conducted a class on how to make arrows out of river cane. Later we had Cherokee games instruction (which our boys handled) and blowgun shooting demonstrations. In turn, we were invited to share a "traditional meal" that had been catered- trout, corn dumplings and frybread. I have some video I'll post when we get it downloaded. Anyway, it was a long weekend and it started raining when we were packing up. I got home, took a four hour bath and then went to bed (no sleep'um good on ground) for the rest of the evening. May 15, 7:00am - Holy Moly, what a week! Where to begin? Okay, Well- Bobbi is doing pretty well, that's the main thing. Here's what's happened. First of all, on Monday evening a guy at the hardware store asked me how Uncle Roy was. "Pretty good" I said. "Is he still in the hospital" says he. $#@!@!!! What????? So, I did some investigating and found him in St. Joseph's Hospital recovering from surgery to remove a medical item left inside him by mistake last December when he had surgery to remove his gall bladder at the area hospital which recently lost some accreditations for lapse procedures (add one more lapse to the list). He's recovering, but very slowly and he's in a lot of pain still. It seems the thing they left cause severe infection and Pancriitis (hope I spelled that right). They were afraid he had pancreatic cancer. David and I went to visit him and he sure appreciates any visit.He's in St. Jo's room 825. May 12, 2:00pm - I didn't get a chance to update the page on Mothers Day. Sorry. We had a nice time at Kim's house. Bobbi's brother Greg
installed a new skylight in what will be the upstairs bathroom, and then we all had a nice luncheon. We had four kinds of quiche! I was wiped out from laying on their couch
all day, so when we got home I laid on our couch to recover. Both of us being pretty tired, we were in bed before 10pm. May 10, 4:00pm - Sorry about skipping yesterday. Today is a beautiful day in Cherokee. Bobbi is feeling well. She needs a lot more rest than she is used to taking, so after talking her into a late morning nap she's feeling a lot more perky this afternoon. I've had meetings all day with my AISA pals, and I think I'll spend some time working in the garden before working on next week's cub scout camporee. I still don't have a great mother's day gift for her or Kim, so if you think of something call me! May 8, 4:45pm - It's Thursday- Scout Meeting day. As soon as she was recovered from radiation enough Bobbi jumped back in to Cub Scout meetings. Today is no different, except she had chemo yesterday and she's pretty tired. She's dictating what she wants to say to me, but I type too slow. Anyway, we'll just keep an eye on her tumor with MRIs every six weeks and keep on keepin on. Next weekend we have 150 Cub Scouts and their parents we're hosting at Lost Cove Campground, so we're gathering crafts, blowguns and darts, Cherokee Marbles and other activity items to keep 150 8-year-olds entertained for a weekend. Oh my gosh, but she says she is up to it. Then in July we have hundreds of Scouters and Scouts (boy and girl) coming here for the annual AISA seminar. As chairman of the organization I've been pretty much MIA, but my friends, as always, are taking up my slack. Bobbi and I love you all very much... have we said that lately? May 7, 8:45am - Well, today is the first day o f the second round of chemo. I have the ZUNE Sam got Bobbi all programmed with 6 hours of music that she likes and she's ready to go. It's another day I can take it easy and keep my foot up, and hope a bruised heel isn't really Plantar Faciitus ( bone spurs). May 6, 8:45pm - What a day! Okay, sorry for the scarcity of news. Here's the straight poop. We never heard from anyone about the MRI till this morning. Dr. Pekal's office called yesterday and said yes- they thought they saw "something", but the neurosurgeon should look at it. Dr. Rhoton, the neurosurgeon, called and asked to see Bobbi at 1:45 this afternoon. According to UPS tracking his office got the CD of the MRI late this morning, but they couldn't find it, so I drove it in. Bobbi and Kim were already in Asheville looking for new wigs (the June Cleaver one she has ain't working for her). So we all met at Dr. Rhoton's office after 1pm. Since it was a last minute appointment we didn't see him till 3pm. Here's what he said. The spot I thought I saw was a blood vessel. That's the good news. The bad news- yes, there is "an enhancement" in the vicinity of where the tumor was removed. It could be scar tissue, but we need to monitor it closely with regular MRIs. It's likely there's a Cyber Knife procedure in our future. May 4, 8:45pm - Okay, well, today was a full day. Bobbi had to ride my lazy butt like Zorro to get me motivated, but once I got going I got stuff done! We wired Kim and Sonny's new master bedroom (the whole unfinished second floor of their house), bath and spare bedroom. That's four separate circuits (including the one for the jacuzzi tub). I got all that done by 6:30 then came home and worked in the garden till now! I got in two more rows of corn and repair some of the damage (dogs, frost, etc). I tell people I'm glad to go to work 'cause I need the rest, but they always think I'm kidding. We'd be out there still if it wasn't dark. May 2 , 11:00am - No news yet on the MRI. We're waiting for a diagnosis. Dr. Olson (aka Cousin Dick) looked at the image and said something like "ya can't tell diddly from a single image like that!" or words to that effect ;-) Someone else said that when her brother had the same symptoms after brain surgery it was diagnosed as nerves remaking connections after the trauma. No matter what it is, we're still waiting to hear. May 1 , 5:00am - I guess we're mostly waiting to hear about the results from Wednesday night's MRI. Today is the Cherokee Day Of Caring... sort of a community Habitat For Humanity fix your neighbor's house day. That ought to keep me well occupied .I know I was supposed to announce the first team training walk of the KnockaWalkas... sorry, I just haven't got organized yet. April 30, 10:00pm - Okay, well, Dr. Pekal decided when was now! We just got home from the hospital where we had an MRI. Bobbi admitted she was having more and more headaches, though they were more like flashes. Anyway, the MRI technician said it was going to be a few days before anyone would "read" it and tell us what it said... but we got a copy of the CD! It's probably a bad idea for a layperson to try to interpret an MRI image without years of train. For example I think one view looks like a kitty cat. In the large view the top left one looks like The Cowardly Lion with his eyes closed to me. Bobbi says her headaches are all just behind her right temple area, but on both bottom views we both think we see a mass on the left side. Maybe it's something the cat left. An MRI is a 3D image, so the one static shot we have here probably can't be interpreted accurately anyway.
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